Organisations

Indo US Organization for Rare Diseases IndoUSrare

 Herndon

IndoUSrare is a humanitarian non-profit 501(C)(3) tax-exempt public charity organization in the US, addressing the unmet needs of diverse patients with rare diseases globally by building collaborative bridges between the western and eastern geographic silos for all stakeholders to accelerate the development of diagnostics and therapies.
Our mission is to:

  • Advocate for global diversity, equity, and inclusion in clinical trials and improve access to clinical research as a care option for patients living with rare diseases.
  • Connect patients living with rare diseases in India, USA, and globally with clinical trials, patient advocacy groups, research, and international consortia.
  • Conduct and facilitate cross-border research collaborations for rare disorders.
  • Bring together stakeholders of rare diseases by organizing national and international conferences.

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